Apr
30

Bringing Family Wealth to Bear Against a Relentless Illness

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Alice Anane’s father died suddenly of a brutal brain-wasting disease when he was 49. She was 15 at the time and remembers her family thinking that he had contracted mad cow disease on a trip to Britain.

Twenty years later, when she was pregnant with her third child, a routine amniocentesis revealed something different: Her father had most likely died from Creutzfeldt-Jakob disease, a rare illness known as C.J.D. that erases the brain as it ends life, typically within three months…

Bringing Family Wealth to Bear Against a Relentless Illness

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